Navigating PDA in America
A Framework to Support Anxious, Demand-Avoidant Autistic Children, Teens and Young Adults
by Ruth Fidler; Diane Gould
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Pub Date 21 Jun 2024 | Archive Date 12 Jul 2024
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Description
Although Pathological Demand Avoidance (PDA) has been a recognized autistic profile in the UK for some time, awareness is still growing in America. When parents first learn about it they talk about having a lightbulb moment of understanding their child better. Many described how, having found traditional parenting and behavioral techniques made things worse instead of better, they felt judged and alone. Teachers and school administrators also reported struggling to support their PDA students. The children, teens and young adults themselves were often left feeling misunderstood.
The authors of this book explain PDA with an emphasis on promoting well-being both for PDA individuals and all those who support them. They provide a neurodiversity-affirming framework for supporting anxious, demand avoidant individuals across a range of settings and services. As awareness spreads across the pond, the compassion and clarity in this book will become a valuable guide to many.
Available Editions
EDITION | Other Format |
ISBN | 9781839972744 |
PRICE | £15.99 (GBP) |
PAGES | 208 |
Available on NetGalley
Featured Reviews
I highly recommend this well-organised and thought book about the experiences around PDA - the challenges, the assessment, the lived experience examples, parenting those with PDA - this book offers good insights, tips and I took away tips for families who have more challenges than others.
It's important to mention at the outset that the book is written by someone who has a child she believes fits a PDA profile, rather than identifying as having PDA herself. Also, within the autistic community, opinion is divided on the legitimacy of a PDA diagnosis.
It's an interesting book to look at from a perspective of whether PDA is the best explanation for the way someone presents. For example, Sasha doesn't seem to thrive on routine like some autistic children. This could be PDA or it could be ADHD. All autistic people will have some demand avoidance, particularly when stressed.
I was a bit confused by the title because I think this is "PDA in the family" and I asked to review a US-based book.
However this book is interesting and the chapters are usefully organised.
Even things like getting an EHCP and going to tribunal are very useful to know about.
This is such a well written book. As someone who works with Autistic kids, knowing more about this profile is going to help me understand my clients so much more. It's also helping me understand myself as an Autistic adult better. A great read for anyone who works with kids of any support needs.
This book gave me a lightbulb moment for me because I was feel so lost with my child. When I started reading about PDA, I realized that is what they have and I felt so validated and not alone in the struggles I've been feeling as a parent. This book was A+ for that reason alone and then I thought it just kept getting better and felt more informed the more I read. I am so grateful for this book coming into my life when it did.
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